The Effect of FAmily-CEntered (FACE®) Pediatric Advanced Care Planning Intervention on Family Anxiety: A Randomized Controlled Clinical Trial for Adolescents With HIV and Their Families.
Christopher J Lin, Yao I Cheng, Patricia A Garvie and 3 others
PMID 33283612WHAT IT FOUND
Overall family anxiety did not differ between groups, but families receiving the advance care planning programme stayed in the minimal anxiety range while control families became mildly anxious.
Depression did not improve.
Key findings
01The overall difference between groups in family anxiety was not significant, but anxiety changed less in the intervention group over time, with lower anxiety at 3-month postintervention.
02Family depression increased in both groups by follow-up, and the intervention did not significantly affect depression.
03Of 105 adolescent/family dyads, 84 were retained at 3-month postintervention, an 80% retention rate.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The main intervention effect on anxiety was not significant; the positive finding came from a time-by-intervention interaction. Only family decision maker outcomes were analysed. Severe depression and suicidality were excluded, and baseline depression scores were low, limiting detection of a depression effect. 84 of 105 dyads were retained at 3 months, so follow-up data were missing for some families. Data on the relationship between the adolescent and surrogate decision maker were not collected. Selection bias is possible because some eligible dyads declined and some adolescents had difficulty identifying a trusted adult decision maker.
Declared interests
The authors declared no potential conflicts of interest. The article is labelled as NIH extramural research support, but no funding statement is given in the supplied text.
The easy way to misread this
Do not conclude that the programme reduces family anxiety overall. The main intervention effect was not significant, and depression did not improve. The positive anxiety finding is a follow-up comparison in an adjusted model.