The Development of Parental Knowledge of Their Child in NNU and PICU: An Exploratory Qualitative Study of Parents' Experiences.
Sarah E Seaton, Ashleigh E Butler, Joseph C Manning and 3 others
PMID 42504556WHAT IT FOUND
Parents of children admitted to neonatal and paediatric intensive care described knowing their child as changing over time.
Some said staff dismissed that knowledge, even when warnings about equipment or deterioration were important.
Key findings
01Parents described knowing their child as changing over time as illness and care requirements changed.
02Some parents said staff dismissed their knowledge, including a warning that a child would pull out a ventilator tube.
03Discharge from neonatal care could leave parents anxious because monitors and practical support were removed, requiring them to use observation.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study included 18 parents of 15 children, so it describes experiences rather than showing how common they are. Participants were mostly White British and English-speaking and were recruited through charities, so families facing language, literacy or advocacy barriers may be missing. Interviews recalled events up to 10 years previously, so accounts may reflect historical care and recall bias. No member checking was done, so the authors could not confirm the themes matched participants' intended meanings. Only parents were interviewed, not healthcare professionals, so staff perspectives were not included. The lead researcher's background in paediatric research may have shaped interpretation.
Declared interests
The research was funded by the National Institute for Health and Care Research, including an Advanced Fellowship for Sarah Seaton. The authors declared no conflicts of interest. The views expressed are those of the authors, not necessarily the funder.
The easy way to misread this
Do not read this as proof that asking parents about their knowledge prevents adverse events. It reports parents' remembered experiences and examples of dismissed warnings, not measured safety outcomes.