OtherJournal of pediatric rehabilitation medicine2018
The development of a lifetime care model in comprehensive spina bifida care.
Betsy Hopson, Brandon G Rocque, David B Joseph, Danielle Powell, Amie B Jackson McLain, Richard D Davis, Tracey S Wilson, Michael J Conklin, Jeffrey P Blount
PMID 30507593WHAT IT FOUND
The program's effect was not tested.
The work describes a spina bifida care model and clinic counts, not evidence that it improves care.
What this paper is
This is a service description of a lifetime spina bifida care model. It outlines prenatal, pediatric, transition, and adult clinic workflows and reports counts of families seen, but it does not test whether the model improves patient care, so there is no finding here to change practice on.