RNSurveyInternational journal of nursing sciences2022

The associations between resilience and socio-demographic factors in parents who care for their children with congenital heart disease.

Amy E Delaney, Mei Rosemary Fu, Melissa L McTernan and 6 others

PMID 35891914

WHAT IT FOUND

Among 413 parents of children with congenital heart disease, lower education and lower household income were linked to lower resilience.

Other caregiving demands showed no link. This flags families who may need support, but does not prove support works.

Key findings

01In the regression, parents with a high school diploma had resilience scores 0.25 points lower than parents with a master's degree or higher on the 5-point scale.

02In the regression, parents with gross household income under $20,000 had resilience scores 0.45 points lower than parents with gross household income more than $100,000.

03Three of the original 18 resilience questions seemed to measure daily routines rather than resilience, so 15 items were kept for the resilience score.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

This was a cross-sectional survey, so it cannot show whether education or income caused lower resilience, or whether resilience changed over time. Participants were recruited through a non-profit advocacy organisation's Facebook, website, and email list, so the sample may not represent all parents of children with congenital heart disease. Most participants were female (91.0%), so the results may not apply equally to male parents. The resilience measure's factor structure fit was not ideal, and the authors caution that simple mean scores should be used cautiously in future DRS-II research. The regression did not include the specific stressors of caring for a child with congenital heart disease, such as day-to-day care, clinic visits, prognosis uncertainty, and health-care system issues.

Declared interests

Funding came from Sigma Theta Tau Chi Chapter, American Association of Nurse Practitioners, and the Ethan M. Lindberg Foundation. The Ethan M. Lindberg Foundation also helped recruit participants through its Facebook, website, and email list. Authors declared that they have no conflict of interest.

The easy way to misread this

Do not conclude that helping parents get more education or more income will raise resilience. This survey only measured associations at one time point and did not test any intervention.

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