TBI-CareQOL military health care frustration in caregivers of service members/veterans with traumatic brain injury.
Noelle E Carlozzi, Rael T Lange, Louis M French and 9 others
PMID 31916805WHAT IT FOUND
A short questionnaire captures caregivers' frustration with military health care for traumatic brain injury.
It appears reliable, takes under one minute, and high scores may flag caregivers needing follow-up. Frustration does not prove services are poor.
Key findings
01The final Military Health Care Frustration item bank contained 43 items.
02Two 6-item short forms were created, one for caregiver services and one for services for the person with TBI.
03Caregivers who reported global frustration with military health care had higher scores than those who reported no global frustration.
STILL TO COME
How it was doneWhat they found
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What it does not show
Caregivers were mainly women and spouses, so the measure was not checked for bias by caregiver gender or relationship type. TBI severity was unavailable for about 30% of caregivers, so results cannot be checked by injury severity. Two recruitment sites were better resourced than many military health care facilities, so reported frustration may be lower than at less-resourced facilities. The study did not collect detailed information about where service members or veterans received services. Test-retest stability was checked only in 42 caregivers who completed a repeat survey within three weeks.
The easy way to misread this
Do not read high frustration scores as proof that care quality is poor. The measure captures caregivers' perceptions, and frustration may reflect lack of awareness of services, access difficulty, coping style, or negative perception.