PTOTSLPCohortRehabilitation psychology2021

Sociodemographic factors and health-related, neuropsychological, and psychosocial functioning in youth with spina bifida.

Jaclyn Lennon Papadakis, Grayson N Holmbeck

PMID 34043409

WHAT IT FOUND

Youth with spina bifida from lower-income families reported more pain but fewer attention and executive function problems than those from higher-income families.

Family stress mediated outcomes, with lower sociodemographic risk linked to less condition-specific stress.

Key findings

01Youth with a low family income-to-needs ratio had significantly more pain compared to youth with a higher ratio.

02Youth characterized by sociodemographic risk across several factors were reported to have fewer attention and executive function problems.

03Greater cumulative sociodemographic risk predicted less spina bifida-related family stress, which in turn predicted fewer attention problems and greater health-related quality of life.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

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What it does not show

The study relied heavily on parent and teacher report for attention and executive function, which may be subject to bias or lower expectations for youth from sociodemographically at-risk backgrounds. Data on urinary tract infections and BMI were based on parent report or medical charts, which may not always be accurate. The study did not include a comparison group of typically developing youth or youth with other disabilities, so it is unclear if these findings are unique to spina bifida. Sociodemographic factors were dichotomized into risk and non-risk categories, which may oversimplify complex social determinants of health. Attrition and missing data reduced the sample size for some analyses, limiting statistical power.

The easy way to misread this

Do not assume that youth with spina bifida from lower-income or minority backgrounds have worse attention or executive function skills. The study found these groups were reported to have fewer problems, which may reflect reporting bias or different expectations rather than true clinical superiority.

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