OTSurveyAutism : the international journal of research and practice2023

Social support and links to quality of life among middle-aged and older autistic adults.

Rebecca A Charlton, Goldie A McQuaid, Gregory L Wallace

PMID 35362329

WHAT IT FOUND

Among 388 autistic adults aged 40 to 83, feeling supported was linked to better quality of life across physical, psychological, social, environmental and autism-specific domains.

Practical everyday support also related to social, environmental and autism-specific quality of life.

Key findings

01Perceived social support was significantly linked to better physical and psychological quality of life in adjusted regression models.

02Practical support was significantly linked to better social and environmental quality of life in adjusted regression models.

03In the autism-specific quality of life model, practical support and perceived support were significantly linked to better scores.

STILL TO COME

How it was doneWhat they foundWhat it means for OTs

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What it does not show

The study measured people at one time, so it cannot show that social support causes better quality of life. Participants were recruited online from a registry and were paid, which may limit how well they represent autistic adults outside that setting. The sample was made up of independent autistic adults likely without intellectual disability and had high education, so it may not represent autistic adults who need more daily support. The sample had limited ethno-racial representation. The models did not explain all differences in quality of life, so other factors may matter. Autism-specific quality of life results should be read cautiously because the disability module was not administered and item responses may differ by sex. The study was not designed or carried out with autistic community involvement.

Declared interests

The authors declared no conflicts of interest. Funding included George Washington University start-up funds, an Autism Speaks Postdoctoral Fellowship, and a Fulbright visiting scholar award.

The easy way to misread this

Do not read these associations as proof that adding social support improves quality of life. The study measured people at one time and only linked perceived support with higher quality of life after accounting for depression, anxiety, health conditions, age and sex.

Read it on PubMed →