Social inclusion of families of children with Zika syndrome in light of Betty Neuman.
Laís Helena de Souza Soares Lima, Maria Wanderléya de Lavor Coriolano-Marinus, Monique de Freitas Gonçalves Lima and 3 others
PMID 39888872WHAT IT FOUND
Mothers of children with Zika syndrome described barriers to social inclusion: school, transport, prejudice and not knowing rights.
Family acceptance and knowing rights were protective.
Key findings
01Nine mothers described barriers to school, transport and social participation.
02Participants described missing ramps, buses without wheelchair space, prejudice and indifference as stressors.
03Mothers reported uncertainty about rights and how to claim them; knowing a right was described as strengthening.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only mothers from one centre in Pernambuco were interviewed, so the results cannot be applied to all families affected by congenital Zika syndrome. The study used convenience or voluntary sampling and included only mothers who provided direct care, not fathers, other caregivers or children. The paper did not test whether any nursing or social inclusion action improved outcomes.
Declared interests
The supplied text does not state funding or conflict of interest declarations.
The easy way to misread this
Do not read these themes as evidence that a nursing intervention or social inclusion programme works. The study used a convenience sample and cannot show outcomes.