Self-care conditioning factors in women and men with urinary incontinence and Human T-Lymphotropic Virus Type 1.
Rayssa Fagundes Batista Paranhos, Juliana Bezerra do Amaral, Rose Ana Rios David and 5 others
PMID 39869757WHAT IT FOUND
People with HTLV-1 and urinary incontinence said faith, support networks, disease knowledge and helpful specialist care aided self-care.
Walking difficulty, home barriers, pain, caring for others, weak family support, unfamiliar professionals and missing catheter supplies hindered it.
Key findings
01Religiosity/spirituality and acceptance/adaptation to living with HTLV-1 were described as facilitating self-care.
02Support networks and access to specialized services were described as facilitating self-care.
03Walking difficulty, home barriers, pain, caring for others, weak family support, psychological suffering, professional knowledge gaps and missing catheter supplies were described as hindering self-care.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The sample was 17 people recruited by convenience from one HTLV association, so the themes may not apply to other settings. This was only the first pragmatic phase of a technology development model, so it surveyed conditioning factors rather than observing actual self-care actions or deficits. Group interviews about intimate urinary symptoms may have limited what participants said, and the same approach was used for women and men, which may have missed gender-specific issues. Qualitative findings cannot show that any factor improved urinary incontinence or self-care.
Declared interests
The paper reports financial support from the Coordination for the Improvement of Higher Education Personnel, process number 130646/2021-0.
The easy way to misread this
Do not conclude that these factors improve urinary incontinence or self-care. This is a qualitative study of perceived facilitating and hindering factors in 17 people at one association, not a tested intervention.