RNQualitativeNursing open2019

Relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care: An interview study.

Ewa Kazimiera Andersson, Helén Dellkvist, Ulrika Bernow Johansson and 1 others

PMID 30918679

WHAT IT FOUND

Relatives of people with dementia moving to residential care found writing and sharing a life story stressful but a way to process grief.

They needed time, clearer guidance, and flexible formats.

Key findings

01Relatives found writing and sharing a life story difficult amid grief, stress and exhaustion.

02They also described writing the life story as a way to deal with grief, express feelings and remember their life together.

03Relatives needed time for the task and wanted the template simplified and adapted to the person.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

Only eight relatives were interviewed, and the sample was purposeful, so the findings cannot be generalised to all families or services. One of nine relatives who accepted the invitation withdrew before the interview. Four participants had university education and four had high school education; the authors note possible selection bias from the relatively high educational qualification. The study reports relatives' experiences only; it does not measure whether life stories were used by staff or whether they improved care. All participants were recruited through nurses in five municipalities in rural southern Sweden, so the context may be specific.

Declared interests

The authors declared no conflicts of interest. No funding source is reported in the supplied text.

The easy way to misread this

Do not conclude that written life stories improve dementia care or reduce relatives' distress. This is a small interview study describing relatives' experiences, and it reports no outcome measures.

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