PTOTSLPCase ReportJournal of pediatric rehabilitation medicine2024

Rehabilitation and functional outcomes for thoraco-omphalo-ischiopagus conjoined twins five years after separation: A case report.

Dana L Sheng, Shawna Arsenault, Michael Wadekamper and 1 others

PMID 38393928

WHAT IT FOUND

Five years after separation, the twins walked in the community without assistive devices, after needing total assistance during inpatient rehabilitation.

This is a case report, not proof that a treatment works.

Key findings

01By discharge from inpatient rehabilitation, the twins had made motor gains and required only supervision for modified crawl and wheelchair mobility.

02Five years after separation, the twins were community ambulators walking without assistive devices.

03During inpatient rehabilitation, continence, swallowing, and cognition showed minimal improvement.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPs

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What it does not show

This is a case report of a single pair of conjoined twins, not a trial, so it cannot show that any treatment caused the outcomes. The twins received many interventions at different times, including surgery, prehabilitation, inpatient rehabilitation, outpatient therapy, equipment, bracing, orthoses, and prostheses, so the contribution of any single component cannot be separated. Outpatient therapy compliance was not objectively assessed, and outpatient function was not measured with a consistent validated outcome because different sites used different scoring methods. The report says the progression of the twins was not always linear and the exact timing of independent ambulation is not known. The twins had extremely complex anatomy and medical comorbidities, including shared organs, ostomies, vesicostomy, skin flaps, kyphosis, and scoliosis, so findings may not apply to other children.

The easy way to misread this

Do not conclude that separation or any specific therapy caused these gains. This is a case report of a single pair with many combined interventions and no comparison group.

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