RNOtherInvestigacion y educacion en enfermeria2023

Recruitment, retention, and adherence of family caregivers: Lessons from a multisite trial.

Leidy Johanna Rueda Díaz, Erika de Souza Guedes, Diná de Almeida Lopes Monteiro da Cruz

PMID 38589322

WHAT IT FOUND

Most family caregivers dropped out before the telephone intervention ended, with only 40.3% receiving all five sessions.

Retention was worse in the intervention group than usual care, and few completed the assigned activity diaries. The programme was not feasible as delivered.

Key findings

01Only 42 of the 104 caregivers assigned to the intervention group received all five telephone sessions, while 17 received none.

02Retention was significantly worse in the intervention group than the control group, with more losses to follow-up in the intervention arm.

03Most caregivers who completed all five sessions reported never having filled in the activity diary before their next call.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

This is a secondary analysis of process outcomes only. It reports nothing about whether the intervention worked for caregiver strain, well-being, or quality of life. No retention protocol was planned in advance, so it is unclear whether better design could have prevented the dropouts or whether the intervention format itself was unacceptable to caregivers. Caregiver satisfaction and perceived usefulness of the programme were never measured, so the reasons for non-adherence remain partly speculative. The sample was drawn from outpatient and oncology settings in two Latin American cities, which may limit generalisability to other healthcare systems or caregiver populations.

Declared interests

Funding was provided by the São Paulo Research Foundation (FAPESP). No author conflicts of interest are reported in the supplied text.

The easy way to misread this

Do not read the low retention and adherence as proof that telephone psychoeducation is ineffective for caregivers. This paper reports only who stayed and who completed the calls. It contains no outcome data, so it cannot tell you whether the intervention reduced strain or improved quality of life for the caregivers who did receive it.

Read it on PubMed →

Recruitment, retention, and adherence of family caregivers: Lessons from a multisite trial. — Applied Evidence