Recommendations for Systematizing Transplant Education Within a Care Delivery System for Patients With Chronic Kidney Disease Stages 3 to 5.
Amy D Waterman, Amanda Faye Lipsey, Omesh N Ranasinghe and 6 others
PMID 32238045WHAT IT FOUND
CKD 3-5 patients wanted transplant education earlier, in Spanish for Spanish speakers, with family included and follow-up after classes.
They feared donor risk, costs, and burden. This reports preferences and barriers, not tested outcomes.
Key findings
01Patients, support persons, and providers reported barriers including confusion about CKD, fears about transplant, financial concerns, and difficulty attending education sessions.
02Patients wanted transplant education earlier and along with information about how to prevent ESRD.
03Participants recommended Spanish-language resources and classes taught by a Spanish-speaking educator to overcome language barriers.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study was exploratory and did not define the exact education content or resources needed. The sample was relatively small, so differences by CKD stage, language, or subgroup could not be isolated. Participants were from a single integrated health system, Kaiser Permanente Southern California, so findings may not transfer to other settings. No education program was tested, so the findings are preferences and barriers, not evidence of effectiveness.
Declared interests
Research support from NIH and U.S. government P.H.S. is listed in the publication types. No author conflict-of-interest statement is provided in the article text.
The easy way to misread this
Do not read these recommendations as evidence that earlier transplant education increases living donation or preemptive transplants. The study only reported patient and provider preferences and barriers; it did not test an education program or measure transplant outcomes.