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Psychosocial Nursing Diagnoses of Individuals With Myalgic Encephalomyelitis-Chronic Fatigue Syndrome: A Descriptive Study.

Cristina Oter-Quintana, Almudena Alameda-Cuesta, Pedro Ruymán Brito-Brito and 5 others

PMID 40304221

WHAT IT FOUND

Most adults with ME/CFS had provisional psychosocial nursing labels, including powerlessness in 38 of 48, ineffective coping in 30, fear in 30, social isolation in 28.

A nurse should confirm them in assessment.

Key findings

01Powerlessness was the most frequent provisional psychosocial nursing label, assigned to 38 participants.

02Ineffective coping and fear were each assigned to 30 participants, and social isolation to 28 participants.

03A longer time since diagnosis, higher symptom frequency and severity, and several comorbid health problems were grouped with a poorer psychosocial label profile.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The sample was self-selected from one patient association, and only 48 participants completed the entire form, not the planned 160. The participation rate was 22.7%, so members who did not respond may have had different energy levels or experiences. All clinical information was self-reported, including the ME/CFS diagnosis and comorbidities. The psychosocial labels were generated by a questionnaire and are provisional hypotheses that need nurse verification in a clinical assessment interview. The design was cross-sectional, so it cannot show that symptoms, diagnosis duration or comorbidities caused the psychosocial profiles. The multivariate label analysis used many variables in a small sample, which the authors say can overfit and make patterns less reliable. The participants were mostly women and highly educated, which may not represent people with ME/CFS in clinics or less severe cases.

Declared interests

The authors declared no conflicts of interest.

The easy way to misread this

Do not read the questionnaire labels as confirmed nursing diagnoses or as proof that ME/CFS causes psychosocial problems. They were provisional hypotheses from 48 self-selected association members, and the study cannot separate cause and effect.

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