Privacy Barriers in Health Monitoring: Scoping Review.
Luyi Sun, Bian Yang, Els Kindt and 1 others
PMID 38723253WHAT IT FOUND
Privacy concerns about home health monitoring technologies did not show a clear pattern.
The review found they varied by person, technology, age, health needs, trust and context, and current evidence was too inconsistent to call privacy a major barrier.
Key findings
01The review found contradictory evidence about privacy barriers and concluded privacy concerns vary from person to person, with insufficient evidence to validate their importance currently.
02The review identified many factors associated with privacy concerns: context and type of technology, age, health needs, personal trust and device usability, trade-offs among privacy, autonomy, assistance, safety or independence, health status, region, gender, user roles, sociocultural context, emotion, previous knowledge, personality, and potential use of personal data.
03The review found only 1 of the 66 included articles conducted interviews with caregivers, and only 2 discussed bystander privacy concerns.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for RNs
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What it does not show
The review was not exhaustive: the authors added only the most relevant and important works and did not strictly follow PRISMA steps for all sources. The search focused on privacy attitudes or legal norms in Norway, the EU and the United States, so studies from other regions or with different terms may have been missed. Few included articles directly addressed legal norms or legal concerns about privacy in health monitoring, so the legal section is incomplete. The included studies used very different methods, participant groups and scenarios, which produced contradictory findings about privacy concerns. Studies that found no privacy concerns often had small participant numbers, so sampling bias is possible. The authors note possible confirmation bias, inducible questions, group effects and lack of longitudinal data, so privacy attitudes may not reflect real behaviour.
Declared interests
The article states this research received no external funding.
The easy way to misread this
Do not conclude that privacy concerns are proven to block adoption of health monitoring technologies. The review found contradictory evidence and concluded privacy concerns vary by person and current evidence is insufficient to validate their importance.