Preparing Implementation of Transition Readiness Screening: What Do Paediatric Cancer Survivors and Caregivers Want?
Marika Monarque, Laurianne Buron, Nadège Gendron Granger and 10 others
PMID 40595402WHAT IT FOUND
Most survivors were unaware of transition differences and found the TRAQ questionnaire clear but lacking options for irrelevant items.
Families wanted ongoing nurse-led discussions, both paper and digital formats, and a website with testimonials and mental health resources rather than paper flyers.
Key findings
01Most adolescents lacked awareness of the differences between paediatric and adult care settings and had not received information on the skills needed for transition.
02Participants suggested offering the TRAQ in both paper and online formats, using QR codes for access, and administering it during clinic wait times or appointments rather than in the waiting room.
03Most adolescents and parents emphasized that the TRAQ should be accompanied by ongoing preparatory discussions with healthcare professionals to provide context and address emotional aspects of transition.
STILL TO COME
How it was doneWhat they found
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What it does not show
The sample was small and predominantly white, French-speaking, and consisted mostly of mothers, which may overlook the needs of fathers, cultural minorities, or adolescents with cognitive sequelae. Voluntary sampling may have introduced selection bias, potentially overrepresenting families with higher transition awareness and healthcare engagement. Most participants were already familiar with the TRAQ because they had completed it for a separate research project, which may influence their perceptions of the tool. The study did not aim for data saturation, focusing instead on a pragmatic balance of breadth and depth.
Declared interests
The study was part of a larger project involving clinician, parent, and patient partners. No specific commercial funding or conflicts of interest are declared in the provided text.
The easy way to misread this
Do not interpret these preferences as evidence that using the TRAQ improves transition readiness or health outcomes. This study reports what families want during implementation planning, not the clinical effectiveness of the screening tool itself.