PTOtherJournal of applied research in intellectual disabilities : JARID2024

Preliminary translation of 'Reducing Disability in Alzheimer's Disease' among individuals with intellectual disabilities and caregiver dyads.

Lauren T Ptomey, Kelli Barton, Emma Swinford and 10 others

PMID 38621995

WHAT IT FOUND

The adapted RDAD-KC home program did not show a significant change in physical activity, behavioral severity, caregiver distress, unmet needs, or strain.

It was small, unpowered, and had no comparison group.

Key findings

0144 dyads enrolled, and 23 completed at least 75% of the intervention, defined as 9 of 12 modules.

02Physical activity increased by 164 min/wk (99% increase), but this change was not statistically significant (p=0.20) and varied widely.

03Behavioral symptom severity did not significantly change (p=0.07), and caregiver distress, unmet needs, and strain also did not significantly change (p=0.14, p=0.50, p=0.50).

STILL TO COME

How it was doneWhat they foundWhat it means for PTs

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What it does not show

This was a secondary analysis of a quality-improvement service, not a prospective randomised trial. There was no comparison group and only pre-post testing, so causal inference was not possible. There was no long-term follow-up. Only 23 of 44 dyads completed at least 75% of the intervention, so dropout was high. Outcome data were incomplete: 21 caregivers completed strain and physical activity questions, 18 completed unmet needs, and 12 completed NPI-Q. Physical activity was measured by caregiver report rather than by device, so estimates may be inaccurate. All individuals with intellectual disabilities and 80% of caregivers were non-Latino White, so generalizability is limited. Missing data approaches were not defined before analysis, and agencies adapted delivery and outcome collection to local workflows.

Declared interests

The implementation was funded by a cooperative agreement with the US Department of Health and Human Services Administration for Community Living. The Collaborative worked with the funding agency to identify the outcome set. The authors declared no conflicts of interest.

The easy way to misread this

Do not read this as proof that RDAD-KC improves physical activity, behavior, or caregiver outcomes. The changes were not statistically significant, there was no comparison group, and only 23 of 44 dyads completed at least 75% of the intervention.

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