PTOTSLPRNQualitativeEuropean journal of oncology nursing : the official journal of European Oncology Nursing Society2021

Post-treatment head and neck cancer survivors' approaches to self-management: A qualitative study.

Seyedehtanaz Saeidzadeh, Stephanie Gilbertson-White, Catherine H Cherwin and 4 others

PMID 33774374

WHAT IT FOUND

After treatment, head and neck cancer survivors managed symptoms in three fluid ways: building routines, accepting what could not be changed, or acting only when symptoms appeared.

Their choice depended on the problem, certainty about cause, and daily burden.

Key findings

01Post-treatment head and neck cancer survivors described three approaches to self-management: taking charge, living with it, and engaging as needed.

02Taking charge meant adopting new activities or continuing existing ones for symptom control, cancer prevention, and health promotion, then making them part of daily life.

03Living with it could be a deliberate choice when the cause was unclear, no remedy seemed available, or symptoms were accepted; engaging as needed meant acting only when symptoms appeared.

STILL TO COME

How it was doneWhat they foundWhat it means for PTsWhat it means for OTsWhat it means for SLPsWhat it means for RNs

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What it does not show

The study included only 22 survivors from one academic institution, and the sample was 96% white and 68% male, so the approaches may not represent other groups. It was cross-sectional and interview-based, so it could not track how one survivor's approach changed over time. The engaging as-needed approach was rarely explicit and was described as preliminary, so it is less firmly established than the other two. It asked survivors to describe their self-management; it did not observe routines, measure outcomes, or test whether any approach was better. The paper reports 22 participants but does not clearly state how many of the 60 emailed potential participants refused or were excluded.

Declared interests

The authors declared no conflict of interest; no funding statement is given.

The easy way to misread this

Do not read the three approaches as evidence that one works better or that tailored advice improves outcomes. This qualitative study describes what survivors said they did; it did not test self-management outcomes, and most participants were white, male, and from one institution.

Read it on PubMed →