Positive Experiences of Seriously ill Lesbian, Gay, Bisexual, Transgender, and Queer Persons and Their Partners With Healthcare Providers: Project Respect.
Cathy Berkman, Gary L Stein, Noelle Marie Javier and 8 others
PMID 41579073WHAT IT FOUND
Seriously ill LGBTQ+ patients and partners described good care as providers who were easy to talk with, used correct pronouns, included partners respectfully, and used inclusive intake forms.
Virtually all who reported positive care also reported disrespectful or inadequate care.
Key findings
01Virtually all respondents who reported positive care also reported disrespectful or inadequate care.
02Respondents valued providers who were easy to talk with about being LGBTQ+ and staff who used correct pronouns and recognized gender identity.
03Positive care included intake forms and assessments with appropriate sexual orientation and gender identity choices, respectful partner inclusion in meetings and decisions, and staff support for affection between patient and partner.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The sample was recruited through convenience sampling, so the findings may not apply to all seriously ill LGBTQ+ people or their partners. The number of respondents within each LGBTQ+ community was small, so results were not reported separately by sexual orientation, gender identity, race, or ethnicity. Virtually all respondents who reported positive care also reported disrespectful or inadequate care, so the paper does not describe a wholly affirming care experience.
Declared interests
The authors declared no potential conflicts of interest.
The easy way to misread this
Do not read these reports as evidence that a provider behavior caused a better outcome. The study used convenience sampling and open-ended survey responses, and virtually all respondents who reported positive care also reported disrespectful or inadequate care.