RNPilotJournal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association2024

Pilot Testing Educational Videos for Black Caregivers Receiving Home Hospice Care.

Taeyoung Park, Brittney Parillon, Dulce M Cruz-Oliver and 6 others

PMID 38842308

WHAT IT FOUND

10 Black hospice caregivers watched four symptom-management videos, found them helpful, and reported greater comfort and knowledge about liquid medications, opioids, agitation, and end-of-life signs.

Scores rose, but this pilot did not test whether the videos work.

Key findings

01All 10 caregivers watched all four videos, and all 10 found them helpful; 9 would recommend them to other Black hospice caregivers.

02Preparedness scores rose from 23.5 to 28.3 and competency scores rose from 13.8 to 14.3 after viewing the videos, while all caregivers had nurse and social worker visits and 80% had spiritual care visits, so the contribution of the videos alone cannot be separated.

03Comfort and knowledge scores increased for all seven topics after viewing the videos, including liquid medications from 3.9 to 4.6, opioid pain management from 3.2 to 4.0, agitation from 4.1 to 4.6, and end-of-life signs from 2.9 to 4.4.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The study included only 10 caregivers from one urban hospice, so it may not apply to Black caregivers in rural or suburban areas. It was a pilot feasibility study without randomisation and was not powered to detect effect sizes, so score changes cannot be treated as proof the videos work. The sample was highly educated, with 80% holding a college or graduate degree, and recruitment and no-show rates were 58% and 29%, which may introduce sampling and nonresponse bias. The pre- and post-intervention design did not examine long-term impact, and caregivers were also receiving home hospice services: all had nurse and social worker visits, and 80% had spiritual care visits, so the contribution of the videos alone cannot be separated.

Declared interests

The work was supported by National Institute on Aging grants and subawards and by the National Center for Advancing Translational Sciences of the National Institutes of Health. The authors declared no conflicts of interest.

The easy way to misread this

Do not read the score increases as proof the videos work. This was a 10-person pilot without randomisation, not powered to detect effect sizes, and caregivers were also receiving home hospice services: all had nurse and social worker visits, and 80% had spiritual care visits, so the contribution of the videos alone cannot be separated.

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