RNQualitativeNursing open2023

Physical and socioeconomic burden of caregiving on family caregivers of children with cancer at a tertiary Hospital in Ghana.

Beatrice A A Bekui, Lillian Akorfa Ohene, Caroline Badzi and 2 others

PMID 36126082

WHAT IT FOUND

Fifteen family caregivers of children with cancer in Ghana reported back pain, fatigue, poor appetite, sleep loss, social isolation, debt, job loss, and strain on siblings.

These are their experiences, not proof that any support works.

Key findings

01Caregivers reported physical burdens including aches and pains, loss of appetite, fatigue, compromised function, and sleep disruption.

02Caregivers reported socioeconomic burdens including social isolation, role adjustment and sibling neglect, financial burden, and loss of employment.

03All participants reported carrying children on their back, and most reported body pains and discomfort due to caregiving activities.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The findings come from 15 caregivers at one hospital in Accra, so they may not match families in other settings. Interviews relied on recall, so memory and current stress could shape what was said. The study described experiences and did not test whether caregiver assessment, respite, massage or financial help improves outcomes.

The easy way to misread this

Do not read this as evidence that caregiver support programmes, respite, massage or financial counselling reduce burden. The study only described what 15 caregivers said at one hospital, and it did not test any intervention.

Read it on PubMed →