Perspectives of parents and nurses on the content validity of the Family Empowerment Scale for parents of children with a chronic condition: A mixed-methods study.
Elisabeth W Segers, Agnes van den Hoogen, Irene C van Eerden and 2 others
PMID 30426545WHAT IT FOUND
The Dutch parent empowerment questionnaire was judged relevant and understandable for parents of children with a chronic condition, but ten items need wording changes before routine use.
Key findings
01The scale-level relevance score was 0.88; 0.80 is the lower acceptable limit.
02Ten items were recommended for modification, and no items were advised to be removed.
03Item 12 was rated low by parents and nurses, with scores of 0.52 and 0.50.
STILL TO COME
How it was doneWhat they found
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What it does not show
The study was done in one academic children's hospital in the Netherlands, so it may not apply to other settings. Participants had to speak, write, and read Dutch, so it says nothing about parents who cannot. The community domain was not translated or tested, so the questionnaire does not cover that part of empowerment. Qualitative interviews included only 8 parents and 4 nurses, so they are a narrow view of understanding. The authors noted difficulty including lower-educated and non-native parents. This was a content validity study, not a trial of whether using the questionnaire changes care or empowerment.
Declared interests
No funding was reported, and the authors declared no conflicts of interest.
The easy way to misread this
Do not read this as evidence that the questionnaire improves parental empowerment or care. It tested only item relevance and understandability in 22 parents and 12 nurses, and ten items were advised to be modified.