RNQualitativeThe Journal of the Association of Nurses in AIDS Care : JANAC2022

Perspectives About Transition Readiness Among Adolescents and Young People Living With Perinatally Acquired HIV in Rural, Southwestern Uganda: A Qualitative Study.

Scholastic Ashaba, Brian C Zanoni, Charles Baguma and 5 others

PMID 35604846

WHAT IT FOUND

Adolescents and young adults with perinatally acquired HIV, caregivers, and providers said transition readiness needs health literacy, self-advocacy, social support, and individualized timing.

Age alone was not seen as enough to decide when to move to adult HIV care.

Key findings

01Participants grouped transition readiness into four themes: preparation for transition, communication between stakeholders, social support, and timing of transition.

02Young people living with perinatally acquired HIV said they needed health literacy and self-advocacy skills, and that skill-building should begin several years before transfer.

03Participants said chronological age alone was not enough to decide transition timing and suggested considering years in care, adherence, and keeping clinic appointments.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The interviews took place at one HIV clinic in rural southwestern Uganda and used a purposive sample, so the views may not apply to other settings in Uganda. Only women caregivers were interviewed, and providers from the adult HIV clinic were not included, so the transition process was not captured from all relevant people. The study reports participants' perspectives and themes; it did not test a transition programme or measure outcomes.

Declared interests

The article is listed as NIH extramural research support. Dr. Tsai reports a financial honorarium from Elsevier for editorial work; all other authors declare no real or perceived vested interests related to the article.

The easy way to misread this

Do not read these themes as evidence that a transition-readiness approach improves HIV outcomes. This was a qualitative study of perspectives from one clinic, and it did not test an intervention or measure treatment outcomes.

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