RNNarrative ReviewThe American journal of hospice & palliative care2024

Pediatric Oncology Hospice: A Comprehensive Review.

Ali Tafazoli, Katharine Cronin-Wood

PMID 38225192

WHAT IT FOUND

Pediatric oncology hospice lacks standardized guidelines, creating uncertainty in care delivery.

Nurses are identified as central to daily management, but staffing shortages directly reduce family quality of life. Home-based care is preferred but often inaccessible due to financial and cultural barriers.

Key findings

01Nurses are the mainstays of pediatric hospice care due to their role in handling daily needs and providing continuous presence, but inadequate nursing staff or home visit availability significantly decreases the quality of life for the family.

02Home is the preferred place of death for both parents and clinicians, yet actual care often occurs in hospitals or oncology wards due to accessibility issues, financial constraints, and cultural factors.

03There are no fixed, universally applicable eligibility criteria for pediatric hospice; local centers use varying guidelines, often borrowing from adult protocols, which complicates referral and admission decisions.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

This is a narrative review, not a systematic review or meta-analysis, so it does not provide a quantified level of evidence for specific interventions. The search was limited to PubMed, which may have excluded relevant literature from other databases. The review highlights a lack of pediatric-specific guidelines, meaning many conclusions are based on extrapolated adult data or small, heterogeneous studies. The authors note that the distinction between hospice and palliative care is often blurred in the literature, complicating the interpretation of findings.

Declared interests

No conflicts of interest or funding sources were reported in the provided text.

The easy way to misread this

Do not interpret this review as evidence that specific nursing interventions improve survival or symptom scores. It describes the structure and challenges of pediatric hospice care, identifying nurses as central to the model, but it does not test the efficacy of nursing practices. The findings are qualitative summaries of existing literature gaps and workforce realities.

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