Patients' Voices of Care Encounters and Organisational Influences on Existential Suffering in Cancer Care: A Qualitative Study.
Cecilia Linnanen, Elisabeth Bergdahl, Jessica Hemberg
PMID 42390202WHAT IT FOUND
Cancer patients described being ignored, rushed, or treated as bodies as causing suffering.
Nurses who listened, believed their pain, explained care step by step, and stayed present helped them feel safe and human.
Key findings
01Patients said being ignored, not listened to, or treated as a body rather than a person caused suffering and loss of trust.
02Patients described an acute survival state needing simple presence and distraction, and a later processing state needing time to talk through emotions and questions.
03Patients said fragmented care, rushed staff, and missing information added to suffering, while listening, step-by-step explanations, and time to talk made them feel safer.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only ten women were interviewed, all in Finland, so the findings cannot be generalised to men, other countries, or all cancer patients. Participants were self-selected through a cancer society and an invitation that mentioned severe suffering or degrading treatment, so the group may have been especially likely to have negative care experiences. The interview guide was not pilot tested, and transcripts were not returned to participants for review, although one participant reviewed the findings. Participants were in different phases, including curative, palliative, and survivorship, so experiences may not be comparable across those stages.
Declared interests
The authors declared no conflicts of interest. Funding came from several foundations and university funds. Express Scribe and Microsoft Excel were used for transcription and data management, and a locally hosted version of M365 Copilot was used only for language editing.
The easy way to misread this
Do not read this as proof that listening and step-by-step explanations reduce suffering in all cancer patients. It is a qualitative interview study of ten women, self-selected through a cancer society after an invitation about severe suffering or degrading treatment, so it describes these participants' experiences rather than measuring change.