Patient Participation for Frail Older Persons and Their Next of Kin in Hospital Care-A Scoping Review.
Pernilla Bengtsson, Maria Larsson, Anna Josse Eklund
PMID 40375626WHAT IT FOUND
Frail older patients and their next of kin in hospital felt they were participating when staff gave understandable information, listened, and let them make decisions.
They felt excluded when staff were unavailable, gave information hastily, or ignored their concerns.
Key findings
01For frail older patients, participation mainly meant being informed, understanding information through good communication, and being given opportunities to make decisions.
02Next of kin felt involved when they received clear information, nurses listened with interest, and they could visit at suitable times.
03Barriers included staff being unavailable or unfriendly, unclear or overwhelming communication, fatigue, pain, confusion, impaired vision or hearing, poor continuity, ward routines, and noisy surroundings.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
This is a scoping review, not a trial. It describes what patients and next of kin reported, so it cannot show that any communication change improves participation or clinical outcomes. No protocol was registered before the review began. Evidence was not weighed, and all included studies were accepted after a global quality assessment. Most included studies were qualitative, and only two explored both patient and next of kin perspectives. All included studies came from Western settings, so expectations about participation may not transfer elsewhere. Lack of consensus on frailty could have caused relevant studies to be missed, and six articles were found by screening reference lists.
Declared interests
Funded by Region Värmland. The authors declared no conflicts of interest.
The easy way to misread this
Do not read this as proof that giving more information improves patient outcomes. It maps what frail older patients and their next of kin said helped or hindered participation, and it includes no tested intervention or outcome.