RNSystematic ReviewInternational journal of older people nursing2025

Patient Participation for Frail Older Persons and Their Next of Kin in Hospital Care-A Scoping Review.

Pernilla Bengtsson, Maria Larsson, Anna Josse Eklund

PMID 40375626

WHAT IT FOUND

Frail older patients and their next of kin in hospital felt they were participating when staff gave understandable information, listened, and let them make decisions.

They felt excluded when staff were unavailable, gave information hastily, or ignored their concerns.

Key findings

01For frail older patients, participation mainly meant being informed, understanding information through good communication, and being given opportunities to make decisions.

02Next of kin felt involved when they received clear information, nurses listened with interest, and they could visit at suitable times.

03Barriers included staff being unavailable or unfriendly, unclear or overwhelming communication, fatigue, pain, confusion, impaired vision or hearing, poor continuity, ward routines, and noisy surroundings.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

This is a scoping review, not a trial. It describes what patients and next of kin reported, so it cannot show that any communication change improves participation or clinical outcomes. No protocol was registered before the review began. Evidence was not weighed, and all included studies were accepted after a global quality assessment. Most included studies were qualitative, and only two explored both patient and next of kin perspectives. All included studies came from Western settings, so expectations about participation may not transfer elsewhere. Lack of consensus on frailty could have caused relevant studies to be missed, and six articles were found by screening reference lists.

Declared interests

Funded by Region Värmland. The authors declared no conflicts of interest.

The easy way to misread this

Do not read this as proof that giving more information improves patient outcomes. It maps what frail older patients and their next of kin said helped or hindered participation, and it includes no tested intervention or outcome.

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