Patient Experiences and Prerequisites of Collaboration as Partners in Person-Centred Care: An Interview Study.
Lena Rosenlund, Sofie Jakobsson, Helen Lloyd and 3 others
PMID 39726374WHAT IT FOUND
Patients with long-term illness described good partnership as being seen, believed, and remembered; flexible dialogue, shared everyday goals, and care coordination that did not leave them carrying information between providers.
Key findings
01Five themes described patient experiences of partnership: adapting and self-managing in daily life, handling and carrying information, building trust and continuity, acting in a flexible and transparent dialogue, and sharing the way forward.
02Patients said trust grew when staff saw them as whole persons, listened, respected them, and remembered what mattered to them.
03Patients often had to coordinate and carry information between providers, and they wanted the healthcare system to transfer relevant knowledge instead.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only 15 patients were interviewed, and they volunteered through patient councils, so they may be more engaged in care than average. Most participants had cancer, so the findings may not fit all chronic conditions, healthcare settings, or community services. Some participants described experiences from the past, which may not match current care. All interviews were done by one researcher who had previously worked as a contact nurse, and reflexivity was used but could still shape interpretation. The study reports experiences, not outcomes, so it cannot show whether these ways of communicating improve health or care quality.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not read these themes as evidence that person-centred communication improves clinical outcomes. The study only describes 15 patients' experiences, mostly cancer, and cannot show effects.