Patient & Caregiver Experiences: Qualitative Study Comparison Before and After Implementation of Early Palliative Care for Advanced Colorectal Cancer.
Sadia Ahmed, Syeda Farwa Naqvi, Aynharan Sinnarajah and 3 others
PMID 35254117WHAT IT FOUND
After the pathway, patients and caregivers described the palliative care nurse as a home-visit liaison who helped coordinate care with oncologists and family physicians.
They described palliative care as symptom and quality-of-life support, and advance care planning without feeling pressured.
Key findings
01After the pathway, participants described the palliative care nurse as a liaison who helped coordinate communication and access to care.
02Most participants had advance care planning discussions with their care team, and described the palliative care nurse as helping them without pressure.
03Most participants viewed palliative care as supportive care for symptoms and quality of life, although some still associated it with end of life and stigma.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Only 12 patients and caregivers were interviewed at one cancer centre, so the themes may not apply to other cancers, settings, or families. The before and after groups were different people, so the study compared experiences rather than showing change within the same patients. The palliative care nurse recruited participants, which may have attracted people with more positive experiences. The pathway included several supports at once, including nurse visits, homecare, screening, and shared care letters, so the study cannot separate which part mattered. Telephone interviews captured perceived experiences, not measured symptom control, hospital use, survival, or quality-of-life outcomes.
Declared interests
The authors declared no potential conflicts of interest. Funding included a graduate studentship co-sponsored by Alberta Innovates and the Canadian Institutes of Health Research, Canadian Institutes of Health Research and Alberta Health grants, and a Canadian Institutes of Health Research project grant.
The easy way to misread this
Do not conclude that the specialist nurse alone improved outcomes or that the pathway was tested and proven. The study describes experiences from a small qualitative comparison, and the pathway also included homecare supports, screening, and shared care letters, so the effect of any single component cannot be separated.