Palliative care in primary health care: scoping review.
Eveline Treméa Justino, Maristel Kasper, Karen da Silva Santos and 2 others
PMID 32609270WHAT IT FOUND
Palliative care in primary health care is possible but uneven.
Home care, symptom assessment, dignity and caregiver support appear, while training, network organization and resources limit it.
Key findings
01The review included 18 publications, eight qualitative and ten quantitative.
02The included studies used health professionals, formal and informal caregivers, patients eligible for palliative care, and, in two studies, medical records.
03The included studies covered home care, pain, dignity, prognosis, caregiver comfort, access, ethics and occupational therapists' perspectives.
STILL TO COME
How it was doneWhat they foundWhat it means for OTsWhat it means for RNs
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What it does not show
The review mapped evidence rather than testing an intervention, so it cannot show whether palliative care in primary health care improves symptoms, quality of life or survival. It included only original full-text articles from 2009 to 2019 in Portuguese, French, Spanish and English, so relevant studies in other languages, years or formats may have been missed. The 18 included publications were heterogeneous, with qualitative and quantitative designs and participants including professionals, caregivers, patients and medical records, so the map is not a single clinical answer. The review included 18 publications, of which 11 were published in Portuguese by Brazilian authors, so the map may reflect Brazilian primary health care more than other systems. The authors state that they did not problematize the different health systems where the studies were produced, and that primary health care is not always fully implemented, which limits direct transfer to other settings.
The easy way to misread this
Do not read this review as evidence that palliative care in primary health care improves symptoms, quality of life or survival. It maps heterogeneous studies and reports possibilities, not tested effects.