Pain Experience in Hemophilia Patients: A Hermeneutic Phenomenological Study.
Masoume Rambod, Farkhondeh Sharif, Zahra Molazem and 1 others
PMID 27713894WHAT IT FOUND
Adults with hemophilia described pain as disrupting movement, sleep and mood, and pushing them to hide it from family or coworkers.
Some avoided painkillers because they feared bleeding or addiction.
Key findings
01Pain limited movement and sleep: patients could not walk, stand, run or climb, and reported interrupted sleep, night waking and taking medication to sleep.
02Pain caused anxiety, regret, frustration, sadness and suffering, and participants described hatred of life, despair, and a wish to escape pain.
03Pain affected social life and analgesic use: patients withdrew from activities, hid pain from family or disclosed it selectively at work, and some avoided painkillers for fear of bleeding or addiction.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study interviewed 14 adults from a hemophilia center in Iran, so the themes may not apply to children, other countries, or patients with different access to factor replacement. Only adults who spoke Persian and were alert and oriented were included, so experiences of adolescents, people with cognitive impairment, untreated mental illness or other genetic diseases were not represented. The study described pain experiences and did not test any pain relief, exercise, medication or psychosocial intervention.
The easy way to misread this
Do not read these themes as proof that pain relief or psychosocial interventions work. This study described 14 patients' experiences and tested no treatment.