Overall Experiences and Perceptions of Racism of Parents of Non-Hispanic Black Children With Diabetes.
Terri H Lipman, Danny P Bracy, Carol J Howe and 5 others
PMID 41267166WHAT IT FOUND
Parents of non-Hispanic Black children with diabetes described feeling judged by providers, some not being offered insulin pumps, and watching for bias in clinics.
They asked for respectful communication, non-Hispanic Black role models, and better access to diabetes technology.
Key findings
01Some parents said provider tone and advice left them feeling judged, while others praised the diabetes team’s responsiveness and education.
02Over one quarter of parents surveyed reported they were not presented with the option of an insulin pump (n = 6, 27%).
03Most parents said they were very often or often careful to observe their surroundings (n = 20, 91%) and avoided certain social situations (n = 14, 64%).
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Of 47 parents who completed the survey, only 22 attended a focus group. Focus group participants were more likely to have a bachelor’s degree or higher (50% vs 8%) and income over $60,000, so lower-income and less educated parents were underrepresented. Researchers did not follow up with nonparticipants to learn why they did not attend.
Declared interests
The authors declared no potential conflicts of interest. The study was funded by the Chair’s Initiative at Children’s Hospital of Philadelphia. Konquered Healthcare Solutions, LLC, whose members were part of the research team, developed the focus group guide and codebook.
The easy way to misread this
Do not read these findings as a measure of how often racism occurs in diabetes care. They describe what 22 parents said, and the focus group sample was more educated and higher income than the parents who did not attend.