Nursing consultation protocol for supported self-care for people with Parkinson's disease.
Alcimar Marcelo do Couto, Angela Maria Alvarez, Darlene Mara Dos Santos Tavares and 2 others
PMID 41417327WHAT IT FOUND
A nursing consultation protocol for supported self-care in Parkinson's disease was rated highly relevant and clear by 12 expert nurses.
It structures assessment and education, but no patient outcomes were tested.
Key findings
01The protocol was designed for nurses to use in primary and secondary healthcare with people with Parkinson's disease and their care partners.
02After the second Delphi round with 12 expert judges, the protocol's global agreement score was 0.99.
03The protocol has not been clinically validated with people with Parkinson's disease.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The protocol was not tested with people with Parkinson's disease or their care partners. Only 12 expert nurses completed the validation. The result shows content agreement among a small expert panel, not patient outcomes. The protocol was developed for primary and secondary care, and its fit in other services is not shown. Clinical validation still needs to address barriers, facilitators, cognitive impairment, disease stage, and follow-up intervals.
The easy way to misread this
Do not read the high agreement score as proof that the protocol improves self-care, function, or quality of life. It was only judged relevant and clear by 12 expert nurses; no people with Parkinson's disease took part in this validation.