'Never once was I thinking the c-word': Parent perspectives on the facilitators and barriers to getting a childhood cancer diagnosis.
Vivian Christensen, Kellee Parker, Lai Hin Kimi Chan and 2 others
PMID 36059140WHAT IT FOUND
Parents of children later diagnosed with cancer often noticed symptoms first but rarely suspected cancer.
Families described quicker diagnosis when providers agreed symptoms were unusual; daily-life context and provider dismissiveness delayed care.
Key findings
01In all but one case, a parent or family member noticed the first symptom, and only two participants suspected cancer.
02Families described action toward diagnosis when parents and providers agreed symptoms were unusual, and when acute symptoms led to urgent care.
03Barriers included interpreting symptoms amid daily life and parents not feeling comfortable questioning providers.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Parents were recalling events from a completed cancer journey, so details may be remembered selectively. Children interviewed alongside parents may have changed what parents said. The sample was not large enough for subgroup analysis. Families of children with central nervous system tumors were excluded, so the findings do not describe those trajectories. The study did not include practitioner perspectives, so it cannot show how providers interpreted symptoms. It describes experiences, not tested interventions or measured outcomes.
Declared interests
The authors declare no conflict of interest. The study is described as part of a larger initiative by the Oregon Clinical and Translational Research Institute.
The easy way to misread this
Do not read these themes as evidence that a communication intervention will reduce diagnostic delay. This is a qualitative interview study of parent experiences; it did not test an intervention or measure outcomes.