Moving from fear to realization: Family engagement in tuberculosis prevention in children living in tuberculosis Sundanese households in Indonesia.
Windy Rakhmawati, Kittikorn Nilmanat, Urai Hatthakit
PMID 31508446WHAT IT FOUND
Mothers caring for children in tuberculosis households first feared transmission and stigma.
They described nurse information and religious coping as ways they moved toward awareness of the need for child screening and prevention.
Key findings
01Most mothers first feared tuberculosis transmission to their children and stigma from others.
02Mothers said nurses gave practical household tuberculosis prevention advice.
03Mothers described tuberculosis as God's will and a test, and linked that belief to seeking care and trying to prevent transmission.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study interviewed 14 mothers only, so it reflects a small purposive sample, not all families in Indonesia. Participants were all Sundanese, Muslim, and living in Bandung, West Java, so the findings may not transfer to other ethnic, religious, or geographic settings. Families had to have a child who had already received tuberculosis screening and adhered to isoniazid preventive therapy for 6 months, so it may not describe families who never screened or who stopped treatment. The accounts came from mothers, not fathers, grandparents, or other household members, even though the paper notes husbands often held decision-making power. This paper reports only one category from a larger grounded theory study, so the full theory is not presented. The study describes themes and experiences; it does not measure whether nurse information, faith, or family engagement reduced tuberculosis transmission or improved child outcomes.
Declared interests
The authors declared no conflict of interest. Funding came from the Directorate General of Resources for Science, Technology and Higher Education, Ministry of Research, Technology and Higher Education of Indonesia, the Graduate School at Prince of Songkla University, Thailand, and the University of Padjadjaran, Indonesia.
The easy way to misread this
Do not read this as evidence that nurse education or religious coping prevents tuberculosis or improves child outcomes. It is a qualitative account of how mothers described moving from fear to awareness, with no measured prevention effect.