PilotJournal of autism and developmental disorders2023

Mindful Self-Care for Caregivers: A Proof of Concept Study Investigating a Model for Embedded Caregiver Support in a Pediatric Setting.

Katherine M Bellone, Stephen C Elliott, Linda S Hynan and 2 others

PMID 34109461

WHAT IT FOUND

Parents of children with autism found a mindfulness self-care group safe, feasible, and acceptable.

Stress and depression scores decreased, but without a control group this cannot show the group caused those changes.

Key findings

01No adverse events occurred, and 12 of 13 participants attended at least one session.

02At Week 4 and Week 8, 85.7% to 100% of participants rated aspects of the intervention and research participation as highly or extremely acceptable.

03Participants reported an average 15.1% decrease in perceived stress and an average 39.5% decrease in depressive symptoms from Week 1 to Week 8.

STILL TO COME

How it was doneWhat they found

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What it does not show

There was no control group, so improvements cannot be attributed to MSCC alone. The sample was small and homogeneous, with 13 parents in the intention-to-treat analysis. Attendance and missing data were uneven: 12 of 13 participants attended at least one session, three completed baseline only, and 9 were included in longitudinal analyses. Participants also received other supports: 11 of 13 had outpatient behavioral therapy targeting child behaviors, and 2 received additional therapy or medication. No fathers completed the intervention; the one male participant left after job loss. The study did not collect facilitator fidelity or homework logs. Screening excluded psychosis, PTSD, and current alcohol or substance use disorders, which may have selected lower-risk caregivers. The group setting itself may have contributed to reported stress and depression reductions. The paper called stress and depression reductions clinically significant, but the overall repeated-measures p values were 0.1692 for stress and 0.1056 for depression.

The easy way to misread this

Do not read the 15.1% and 39.5% reductions as proof the program works. The overall repeated-measures p values for stress and depression were 0.1692 and 0.1056, the study had no control group, and parents also received outpatient behavioral therapy for their child, while some received individual therapy or medication, so the contribution of the program cannot be separated.

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The study

Participants
13 parents
Certainty of evidence
Very low

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    Cite

    Katherine M Bellone, Stephen C Elliott, Linda S Hynan, et al. Mindful Self-Care for Caregivers: A Proof of Concept Study Investigating a Model for Embedded Caregiver Support in a Pediatric Setting. Journal of autism and developmental disorders. 2023.

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