Measuring the Burden on Family Caregivers of People With Cancer: Cross-cultural Translation and Psychometric Testing of the Caregiver Reaction Assessment-Indonesian Version.
Martina Sinta Kristanti, Myrra Vernooij-Dassen, Adi Utarini and 2 others
PMID 31348026WHAT IT FOUND
An Indonesian cancer caregiver burden questionnaire was usable after removing 2 items and moving another.
It took 3.5 minutes, had no missing answers, and gave usable subscale scores, though family support and finance scores were less consistent.
Key findings
01The original 5-factor model did not pass the fit criteria, and the modified 22-item version met 4 of 5 criteria.
02In feasibility testing, 40 caregivers completed ratings, there were no missing values, and the mean completion time was 3.5 minutes.
03Three subscales met the acceptable range (.810, .766, .746), while family support and finance were .650 and .640.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study was cross-sectional, so it did not show whether the questionnaire gives stable results over time. Face-to-face interviews, and the possible presence of patients, may have made caregivers less willing to reveal negative feelings. The sample came from 3 outpatient clinics in Indonesia and included caregivers of patients with cancer in stages 2 to 4, so it may not apply to other countries, settings, or earlier-stage disease. The original model failed, and the authors said the revised instrument needs confirmation in a next study. Two subscales, family support and finances, had values below the acceptable range.
Declared interests
The authors reported no funding or conflicts of interest.
The easy way to misread this
Do not read this as proof that the questionnaire improves caregiver outcomes or works outside Indonesia. It tested how the questionnaire performed in 451 Indonesian caregivers, and the authors said the findings need confirmation in a next study.