Measuring Knowledge of Fertility Preservation in Women With Cystic Fibrosis: Instrument Development and Psychometric Analysis.
Jessica L Corcoran, Peng Li, Caitlin M Campbell and 2 others
PMID 34186019WHAT IT FOUND
Women with cystic fibrosis rated themselves low on fertility preservation knowledge, especially transplant options and immunosuppression effects.
A brief questionnaire may help nurses identify gaps before fertility discussions.
Key findings
01The average total score was 19.04 on a scale from 10 to 40, and the sample reported low self-assessed fertility preservation knowledge.
02Participants reported the least knowledge about reproductive options after transplant and about immunosuppressive therapy effects on fertility and pregnancy.
03Women who had received a specialist referral for reproductive counseling scored higher than those who had not.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study measured self-assessed knowledge, not factual knowledge. The sample was small and mostly White, recruited through snowballing, so it may not represent all women with cystic fibrosis. The cross-sectional design did not assess test-retest reliability. The transplant-related subscale had lower internal consistency than the general fertility subscale. The paper reports instrument development and a survey, not a test of whether using the questionnaire improves care.
Declared interests
The authors reported no conflicts of interest or relevant financial relationships.
The easy way to misread this
Do not treat the questionnaire as proof that women know accurate fertility facts or that using it improves care. It measures self-assessed knowledge and was tested in a small survey sample.