Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation.
Marcia Van Riper, George J Knafl, Maria do Céu Barbieri-Figueiredo and 16 others
PMID 33272069WHAT IT FOUND
Parents across 11 countries generally reported positive family management, though scores varied by location.
The Family Management Measure showed good reliability for most scales, but some language versions had poor consistency, meaning total scores should be interpreted with caution in cross-cultural care.
Key findings
01Parents generally reported positive perceptions of family management, with strength scales scoring above the midpoint and difficulty scales below the midpoint.
02Significant cross-cultural differences existed, with parents from Brazil, Spain, and the United States reporting the least problematic management, while those from Ireland, Italy, Japan, and Korea reported the most.
03While some scales had excellent reliability across languages, the Condition Management Effort and View of Condition Impact scales had poor reliability (below .60) in several language versions.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Participants were volunteers recruited through support groups, which may not represent families who are isolated or struggling most. The study did not perform post-hoc analysis to determine exactly which country pairs differed significantly, only that overall differences existed. Reliability was low for some scales in specific languages, limiting the interpretability of those subscores in those cultural contexts.
Declared interests
No specific funding sources or conflicts of interest were declared in the provided text.
The easy way to misread this
Do not interpret low scores on the 'Condition Management Effort' or 'View of Condition Impact' scales as definitive evidence of family dysfunction in Korean, Spanish, Thai, Italian, or Portuguese populations. These scales had poor internal consistency in these languages, so the results may reflect measurement error rather than actual family experience.