Living with multimorbidity: A qualitative exploration of shared experiences of patients, family caregivers, and healthcare professionals in managing symptoms in the United States.
Anna Peeler, Katie Nelson, Vidisha Agrawalla and 8 others
PMID 38197539WHAT IT FOUND
Patients, caregivers, and clinicians managing multimorbidity in intermediate care valued being heard, honest communication, caregiver education, usable resources, and coordinated follow-up, but said time and system barriers made these hard.
Key findings
01Participants described five major themes: the patient-provider relationship, open and honest communication, accessible resources, caregiver support and education, and care coordination and follow-up.
02Patients and providers said a trusting relationship depended on being seen and heard and including patients and caregivers in shared decisions.
03Participants called for more caregiver partnership, especially at hospitalization and discharge, because caregivers were described as essential but often overlooked.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
All patients and caregivers were recruited from one academic medical center, so the findings may not reflect other settings. The sample was small, especially only two caregivers, and one clinician did not complete the interview. The study was conducted during the COVID-19 pandemic, when care, staffing, procedures, and visitation restrictions may have differed from usual practice. Patients and caregivers were excluded if they did not speak English or had cognitive impairment that prevented interview, so the experiences of those groups are not represented. Most clinicians were female and White, and most had a nursing background, which may limit transferability to other professional or demographic groups. The study used convenience and snowball sampling, a single interviewer, and team consensus to decide saturation.
Declared interests
The authors declared no conflicts of interest.
The easy way to misread this
Do not read these themes as proof that goal-setting, caregiver education, or follow-up calls improve symptoms or outcomes. The study described what participants said mattered in intermediate care, not the effects of an intervention.