RNQualitativeInternational journal of community based nursing and midwifery2018

Lived Experiences of Mothers with Diabetic Children from the Transfer of Caring Role.

Maryam Khandan, Farokh Abazari, Batool Tirgari and 1 others

PMID 29344538

WHAT IT FOUND

Iranian mothers of children with type 1 diabetes described discharge as moving care to them while they felt confused about training.

They faced insulin injections, diet rules, blood-sugar checks, guilt, fear of complications, and costs, while seeking trusted training and family support.

Key findings

01Mothers described three themes: facing care management challenges, care in the shadow of concern, and hard life in the impasse of diabetes.

02After discharge, mothers said diabetes care moved from healthcare providers to them, and children's non-cooperation made diet management difficult.

03Almost half said they had to work to meet treatment costs, and insurance did not cover test strips or insulin needles.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

The study included only 11 mothers in one city in Iran, so the themes may not fit other countries, health systems, or families. The children were 14 years old or younger and had been diagnosed for at least one year, so the findings may not apply to older children, newly diagnosed families, or other caregivers. The time since diagnosis ranged from one to eight years, which may have affected memory of the early discharge period. The study used purposive sampling and did not include fathers, nurses, or children, so it does not show how other people experienced the same transition. As a qualitative study, it reports themes and experiences, not effects, and it cannot show that any intervention worked.

The easy way to misread this

Do not read these themes as evidence that nurse-led training, peer support, or centers reduce maternal stress or improve child diabetes control. The study only describes mothers' experiences and tested no intervention.

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