Lived Experiences of Caregivers of Patients with Borderline Personality Disorder: A Phenomenological Study.
Ali Meshkinyazd, Abbas Heydari, Mohammadreza Fayyazi Bordbar
PMID 32309458WHAT IT FOUND
Caregivers of people with borderline personality disorder described overwhelming burden, guilt, neglect of their own health, financial strain and stigma.
Many hid the diagnosis; many said they preferred death. These are lived experiences, not evidence that any support works.
Key findings
01Most caregivers reported wanting to end their lives, and participants neglected their own health.
02Caregivers reported that continuous care, expensive treatment and poor insurance were exhausting and financially straining.
03Caregivers experienced stigma and hid the diagnosis or hospitalization to avoid negative judgment.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The sample was small and came from a hospital setting in Mashhad, so the themes may not represent caregivers in other places. The authors state that generalizability is limited and that the study may not include all experiences of caregivers living in other cities. The study reports lived experiences rather than outcomes of any treatment or support programme. Interviews were conducted by a nursing PhD student, which may shape rapport and interpretation.
The easy way to misread this
Do not read these themes as evidence that any intervention reduces caregiver distress. The study described lived experiences and did not test support for caregivers.