Levelling the Playing Field: The Role of Workshops to Explore How People With Parkinson's Use Music for Mood and Movement Management as Part of a Patient and Public Involvement Strategy.
Dawn C Rose, Ellen Poliakoff, Rebecca Hadley and 3 others
PMID 36188900WHAT IT FOUND
People with Parkinson's prioritized music for mood regulation, social connection, and overcoming freezing.
They requested interventions that respect their energy levels, offer variety, and reduce the burden of clinical measurement.
Key findings
01Participants identified specific needs for music-based interventions, including using music to overcome freezing, meet people, and relax, while requesting less time spent on empirical measurements and more rest periods.
02The workshop process led to the development of an online survey and a web-based resource, 'Playlist for Parkinson's', to share songs used for specific purposes like walking or relaxation.
STILL TO COME
How it was doneWhat they found
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What it does not show
This is a description of a single workshop event with ten participants, not a controlled study of treatment efficacy. No demographic data was collected from the participants, limiting the generalizability of the findings. The outcomes are qualitative themes and project developments, not measured clinical effects.
Declared interests
The workshops were funded by a Parkinson's UK Network Grant, and the paper was financed by the Swiss National Science Foundation. The authors declare no commercial or financial conflicts of interest.
The easy way to misread this
Do not interpret the 'Playlist for Parkinson's' or the workshop guidelines as evidence that music therapy improves Parkinson's symptoms. This paper reports on the design process for future studies, not on patient outcomes from an intervention.