RNSystematic ReviewThe American journal of hospice & palliative care2026

Legacy-Oriented Interventions for Supporting Family Bereavement and Psychosocial Adaptation in Pediatric Palliative Care: A Systematic Review.

Daniela Jesus-Ferreira, Paulo Reis-Pina

PMID 40988502

WHAT IT FOUND

Families in pediatric palliative care described legacy activities such as photos, videos, heartbeat recordings and storytelling as helping maintain bonds, express grief and find meaning.

These are participants’ accounts, not proof the activities improve bereavement outcomes.

Key findings

01Families described legacy activities as helping maintain a connection with their deceased child through physical keepsakes or preserved rituals.

02Parents said the meaning of a legacy can change as they move through stages of bereavement, and that making sense of the loss is part of grieving.

03One included study reported that children described a legacy video as a safe space to talk about illness and death, with lower anxiety and stress noted.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

All nine included studies were conducted in the United States, so the findings may not transfer to other cultural or healthcare settings. The review included only qualitative studies, so it reports participants’ descriptions rather than measured bereavement outcomes. The search may have missed studies because of language restrictions and because unpublished or grey literature was not included. Heterogeneity of interventions, outcomes and study designs prevented meta-analysis or structured comparison. No quality threshold was applied to exclude lower-quality studies. All studies were unclear on whether researchers made their own beliefs explicit, and most were unclear on researcher influence. One study lacked an explicit ethics statement. Most participants were bereaved parents, with fewer perspectives from children and other family members.

Declared interests

The authors reported no financial support and no potential conflicts of interest.

The easy way to misread this

Do not conclude that legacy activities improve bereavement or reduce anxiety. The review included only qualitative studies of families’ and children’s descriptions, and clinical outcomes such as symptom control were reported in one study without a controlled comparison.

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