Lack of freedom predicted poor self-reported health among family caregivers of children with disabilities during the COVID-19 pandemic in Europe.
Roosa-Maria Savela, Irma Nykänen, Tarja Välimäki
PMID 37036912WHAT IT FOUND
European family caregivers of children with disabilities reported worsened self-reported health and quality of life during the pandemic.
Feeling trapped at home was the main linked factor, and child service interruptions were linked to worse caregiver mental well-being.
Key findings
01Most family caregivers reported worsened quality of life (77%), mental well-being (74%), physical condition (57%) and health status (56%) during the pandemic.
02Lack of freedom or feeling trapped at home was the main factor predicting worsened self-reported physical condition, mental well-being, general health and quality of life.
03Interruptions to the child's health and social services predicted worsened caregiver mental well-being and reduced caregiver access to health and social services.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The survey used non-validated, subjective self-report questions, so the concepts may not be accurately measured. The study was a one-time cross-sectional survey, so it cannot determine outcomes or show change over time. Most participants were women (92%) and had a mean age of 44 years. Limited sociodemographic data meant the study could not assess whether social disparities affected caregivers differently. Participants were recruited through Eurocarers member organisations, partner organisations, Facebook groups and Twitter.
Declared interests
The authors declared no conflicts of interest. The first author received funding from the Jenny and Antti Wihuri Foundation and the Finnish Cultural Foundation (Suomen Kulttuurirahasto).
The easy way to misread this
Do not read these associations as proof that lack of freedom caused poor health. The study was a one-time survey using non-validated self-report questions, so other unmeasured factors may explain the link.