'It's my back…'; developing the coming to spinal clinic resource to improve the health literacy of young people with adolescent idiopathic scoliosis and their parents.
Lucy Bray, Catherine Wilkinson, Colin Bruce and 3 others
PMID 35435029WHAT IT FOUND
Young people with adolescent idiopathic scoliosis and their parents felt uncertain about spinal clinic, struggled to ask questions, and wanted a prep sheet and parent information before appointments.
Key findings
01Young people and parents felt scared, worried and uncertain about what would happen at spinal clinic.
02Young people said they did not know what to ask or how to start to join in during the consultation.
03Young people and parents wanted a physical prep sheet to help them ask questions and remember what was said.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The sample was small and came from one hospital trust, so it may not represent other young people with adolescent idiopathic scoliosis and their parents. The paper developed a resource but did not test it in clinic. Eight of the 10 young people had surgical correction, so the findings may say less about families attending for monitoring or bracing. Group activities made it difficult to link quotes to specific participants.
Declared interests
The authors declared no potential conflicts of interest. The research was funded by the British Scoliosis Research Foundation.
The easy way to misread this
Do not read this as evidence that the prep sheet improves clinic participation or health literacy. The paper developed the resource from workshop views, and it says further work is needed to evaluate acceptability and impact in a clinical setting.