Interpretative Phenomenological Study Exploring Why People With Kidney Failure Say 'No' to a Kidney Transplant.
Emma Jones, Leah McLaughlin, Kate Shakespeare and 1 others
PMID 41118125WHAT IT FOUND
People who declined kidney transplant gave multiple reasons: past trauma, failed transplant, mistrust, fear of surgery or immunosuppression, feeling too old, and wanting younger people to receive kidneys.
Many preferred dialysis because it was stable and quality of life mattered more than longevity.
Key findings
01Participants said there was no single simple reason for declining a transplant; decisions were complex, shared across several themes, and were often carefully thought through as the right choice for them.
02People who had experienced failed transplants were hesitant to proceed, and many rejected immunosuppressant medication because of severe side effects.
03Some participants preferred younger people to receive kidneys, while many said dialysis was familiar, manageable, and allowed good quality of life.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
The study describes experiences and reasons, not whether a different approach would change transplant uptake or improve patient outcomes. People were interviewed once, so the study cannot show how transplant decisions change over time, although some said they might reconsider later. Most participants were White British, so cultural, religious and spiritual influences on declining transplant may be underrepresented. The study was done in the UK NHS, where healthcare is funded by taxation, so findings may not transfer directly to insurance-based systems. Family members and healthcare professionals were not included, so the social and clinical context around these decisions is only partly described. Participants declined transplant at different points in the kidney pathway, including before full assessment, so the group was not a uniform set of listed candidates.
Declared interests
The authors declare no conflicts of interest. Funding is named as KESS 2.
The easy way to misread this
Do not conclude that kidney transplant is the wrong treatment or that nurses should stop discussing it. This qualitative study reports why some people declined and how pressure harmed trust; it does not compare outcomes of dialysis and transplant or test whether better education would change decisions.