RNOtherJournal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association2019

Interdisciplinary Communication: Documentation of Advance Care Planning and End-of-Life Care in Adolescents and Young Adults With Cancer.

Anne Watson, Meaghann Weaver, Shana Jacobs and 1 others

PMID 30829829

WHAT IT FOUND

All adolescents and young adults with cancer who died in this review had documented care limitations, but hospice and palliative care timing varied.

Bedside teams sometimes had to seek patients' preferences from the research team.

Key findings

01All 8 patients had evidence of care limitations, 3 had documented hospice referrals, and 4 had evidence of home hospice at some point.

02Intervention patients had palliative care referrals 241 to 447 days before death, while control patients had referrals 2 to 84 days before death.

03For 2 control adolescents, treating physicians contacted the principal investigator during deterioration to obtain the patients' self-reported treatment preferences, and decisions were made in light of those preferences.

STILL TO COME

How it was doneWhat they foundWhat it means for RNs

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What it does not show

Only 8 patients were reviewed, all from a previous trial and all had died, so this is a very small selected sample. One eligible death could not be reviewed because the patient died at another hospital. The study was a descriptive chart review, not a test of whether better documentation or a specific electronic health record format improves end-of-life care. The authors noted that releasing control participants' treatment preferences to treating physicians may have contaminated the original trial results. The findings come from one large tertiary pediatric hospital and may not apply to other settings, adults, or patients without cancer.

Declared interests

No author conflict of interest statement is provided in the supplied text. The article is listed as receiving NIH extramural and non-U.S. government research support.

The easy way to misread this

Do not conclude that better electronic health record documentation improves end-of-life care. This paper described charts of patients who had died and found that goals of care notes were often hard to access, but it did not test whether changing the record changes care.

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