Improving management of psoriasis patients receiving biological treatment: A qualitative approach.
Bettina Trettin, Steven Feldman, Flemming Andersen and 2 others
PMID 33385301WHAT IT FOUND
Patients with psoriasis on biological treatment felt safer being monitored but found quarterly checklist visits burdensome; lifestyle advice felt like scolding.
Clinicians felt trapped by documentation routines and wanted more time for individual concerns.
Key findings
01The consultations were experienced as a routine biomedical checklist, with documentation taking priority over patients’ individual concerns.
02Patients felt safer being monitored but found lifestyle advice generic and sometimes admonishing, which challenged their self-determination.
03Stable patients and clinicians both saw quarterly follow-ups as excessive, yet guidelines required the same routines and measurements.
STILL TO COME
How it was doneWhat they foundWhat it means for RNs
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What it does not show
Findings come from one Danish outpatient clinic, so they may not transfer to other services or countries. Only 15 patients and 10 clinicians were interviewed, so it is a detailed snapshot, not a measure of how common these experiences are. The researcher observed consultations and was employed at the hospital, which could have influenced what patients and clinicians said or did. It reports experiences and themes, not treatment effects or patient outcomes, so it cannot show that changing consultations improves psoriasis control. The study focused on patients receiving biological treatment and clinicians in that clinic; it does not describe other psoriasis treatments or broader workforce issues.
Declared interests
One author received an unrestricted Novartis grant covering four months of salary, with no reported role in study design, data collection, analysis, publication decisions or manuscript preparation. Another author reported research, speaking or consulting support from a long list of named companies and organizations, and is founder and majority owner of DrScore.com and part owner of Causa Research. Funding came from the University of Southern Denmark, Robert Wehnerts og Kirsten Wehnerts Fond, Odense University Hospital and Novartis.
The easy way to misread this
Do not read this as proof that fewer visits or a different consultation format works. It describes patients’ and clinicians’ experiences only, and the study did not test any change to care.