Implementing public involvement standards in cerebral palsy register research.

WHAT IT FOUND

This paper describes a research team's experience piloting public involvement standards for a cerebral palsy register.

It reports on the process of creating a patient advisory group and revising materials, but contains no clinical findings or patient outcomes.

What this paper is

This is a descriptive report on how a research team piloted public involvement standards for a cerebral palsy register. It details the process of setting up a patient advisory group and revising communication materials, but it reports no clinical outcomes, patient data, or treatment effects. There are no findings here that would change clinical practice.

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