Identifying Patient, Care Partner, and Clinician Needs for Functional Recovery Following Hospitalization When Dementia is Present.
Allison M Gustavson, Emily M Hudson, Jennifer P Wisdom and 6 others
PMID 40049580WHAT IT FOUND
Veterans with dementia and care partners wanted clearer discharge communication, involvement in decisions, and home support; PTs and OTs needed time, training, equipment, and tools for home rehabilitation.
Key findings
01Veterans and care partners said they needed to be involved in discharge decisions and receive education about prognosis, support strategies, and community resources.
02Follow-through on recommended home services varied; some participants never received them or had them stopped early, and care partners described being overwhelmed, exhausted, and burnt out.
03Clinicians described needing more time, training, reliable equipment, and assessments for home-based post-acute care.
STILL TO COME
How it was doneWhat they foundWhat it means for PTsWhat it means for OTs
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What it does not show
The findings are qualitative experiences and needs, not tested effects of an intervention. Participants were from a VA system, so the findings may not represent other healthcare systems. Veterans were all white and non-Hispanic, and participants were described as less diverse and more educated than the typical dementia population in the VA. The interview guide was developed with rehabilitation clinician experts, not Veterans or care partners. Clinician participants were only occupational and physical therapists and assistants, so other disciplines and organizational roles were not represented. Clinician interviews were not recorded because of union stipulations, and all interviews used summative documentation rather than verbatim transcription, which may limit detail. One interviewer had prior clinical relationships with some participants, although another researcher usually conducted those interviews.
Declared interests
The authors declared no conflicts of interest. The article is tagged as supported by non-U.S. government and NIH extramural research funding.
The easy way to misread this
Do not read these themes as evidence that home rehabilitation or collaborative discharge planning improves functional recovery. The study described experiences and needs, not tested outcomes.